Sunday, August 22, 2010

Lyme update

As you know, Dan and I flew up to my doctor in Seattle a month ago and had the PICC line placed so that I could start receiving IV antibiotics.

I've been on some version of antibiotics since late last fall, first killing Bartonella and then working with a combo of drugs to attack the Lyme bacteria.

A year ago, I had no idea why I was sick. Each month brought with it an unknown set of new symptoms. I would cycle through the month with a flare up every 35-ish days. I often predicted when I would get sick again because the cycles were so regular. No one wants a diagnosis like this, but at that point, I just wanted to know what the hell was wrong with me!

I have had several people question whether I was legitimately sick and then a few more question the Lyme diagnosis since it is far from fool-proof. But a year later, I have to say, I feel SO much better and am so thankful for the doctors who risk their licenses to treat this disease. I may not be 100%, and I certainly still have some neurologic deficits, but compared to a year ago, I am so much healthier.

The shooting electric shock pain is gone.

Where I used to be tired from doing nothing, I now am only tired from doing. I may still get more easily fatigued than I used to, but at least I can be somewhat productive. (And this week has been a record for energy I think since before I got pregnant TWO AND A HALF YEARS AGO!)

My joints feel much better and are only stiff momentarily in the morning.

The all-over body pain is gone.

I still get dizzy, but it's becoming more and more related to over-stimulation and florescent lights, as opposed to just being dizzy because I'm awake.

I still forget how to spell words sometimes and can find myself lost in a conversation. My eyes still get tired. And the Bell's Palsy isn't fully resolved.

But I am better, and that's a reason to be optimistic that I will make a full recovery!

1 comment:

  1. Bravo
    So pleased you found something to help you. There are too many nay sayers to contend with but so pleased you found a good Lyme doctor.
    Hmm! Seattle I wonder if it is the same one my Canadian friend goes too, can't be that many in Seattle.

    The all over body pain how well I remember it but I like you still have the painfull stiff feet in the mornings and a few peripheral tinglings and twitchings mainly in my face but life is such a joy so I will keep taking the antibiotics for now.

    So sorry to hear about the loss of your home.